A Huge Milestone!
Today, 5 years ago marked a very special day, a milestone of reflection and celebration.
Back in 2016 it all began as an idea: a blog to find support for our son, our family and connect with other XYY families and find more XYY guys.
With the support of our family and friends, my husband and I decided to create a platform to better understand XYY Syndrome, after our son was diagnosed and we found no support.
In 2018, the association was formed.
This day will always remind me of why we started this journey, with the association, and why we continue to create a more positive future for XYY Syndrome.
It is one thing to never give up on a goal but it’s another to live within it, and our XYY journey has shown many challenges.
This journey has been driven by my passion to help our son, to learn, understand and share lived experiences around this often misunderstood genetic condition.
Through better understanding we can make a difference and support those who need the extra help!
Together we will continue to make a difference and I thank our amazing team and everyone within the community for all your ongoing support to help make the XYY community feel heard.
Amber Gilkes
Chairperson
