Our Awareness Event for XYY Syndrome was hosted on 25 November 2016
Firstly, thank you for the amazing support from from our local Businesses and Community
RILEY’S BARBER SHOP, MEADOW SPRINGS
BAKERS DELIGHT, MEADOW SPRINGS
IN2HAIR, MEADOW SPRINGS
OPTIMAL PHARMACY PLUS, MEADOW SPRINGS
JAMBERRY, NICOLE & KELLY
BRAZROOS LOCAL SOCCER CLUB
ROCKINGHAM AUTISM SERVICES
PAMELA FOR HER AMAZING PHOTOS
I would like to take a moment to thank all my family, friends and XYY Families we have met along this journey and most of all Thank You to my amazing husband David.
With everyone’s support and guidance, David and I have achieved our goals for this awareness event and we look forward to hosting our next one.
Pictures on the day of the event, creating awareness for Boys, Teenagers and all Males born with XYY Syndrome.
Awareness event_THANK YOU_website
Awareness Event For XYY Syndrome
Come show your support for families, children, teenagers , adults diagnosed with XYY Syndrome.
Only males are born with XYY Syndrome and only a true diagnosis can be made by genetic testing( blood test)
Our son was born with XYY Syndrome and needs daily support, however his diagnosis is not recognised as needing specialised support and we have funded a lot on our own.
My husband and I decided to host this awareness event to share our story and share as much information as we can for all XYY boys, teenagers, adults & families that need support and like us have found it very hard to find the support that’s needed.
On our journey we have come across many other XYY families, boys, teenagers and adults online just like us, the common thread is that this diagnosis is just pushed aside.
I hear this a lot, we get told just give him love and you’ll be ok. We do, but we need so much more support and understanding then that.
Please help us and show your support by sharing the awareness for XYY Syndrome.
Click this link XYY Syndrome Awareness Event 25 November 2016 for full details