This year we are starting regular Podcasts.
This series of Podcasts intend to focus on several areas. We know that there is a need to gather and disseminate more information to the community in general and especially parents of boys and men with XYY Syndrome.
The Podcasts will initially focus on 2 areas
- Connecting to the XYY Community
- Get on Board, where we will be creating Podcasts with specialists
Meet Amber Gilkes – Founder and Chairperson
Hear the story of the journey from the foundation of a family association to a National Charity. Amber shares her story of how and why she founded the XYY Syndrome Association of Australia Inc, the highlights and challenges, the impact the association is having and what the future plans are for the charity.
In the lead-up to the International Day of People with Disability, I was invited to record a Podcast with ConnectGroups to talk about my experience as a Mother of a child with XYY, and the importance of inclusion and raising awareness of this rare, genetic, and undiagnosed conditions sector.