XYY Awareness

Creating more positive awareness for XYY Syndrome

Amber Events, XYY Awareness, XYY Syndrome , , , ,

The journey for XYY in our family has been almost 10 years. Over this time I have taken on the role to help create a more positive image around XYY Syndrome. When I first realised there was a huge need for support around this syndrome I couldn’t help but find ways to get the information out to the public in the hope of supporting those who need that extra support including our family.

With little to no information out there on XYY Syndrome, my family and I decided to start the XYY Syndrome Association of Australia Inc. to generate resources to hand out.

XYY is a huge part of my life’s journey and I will continue to create positive steps for the future of XYY Syndrome.

It’s time to take XYY to a new level and get information out on a larger scale, our association is not funded for any of our projects and this needs to change.

My next goal is to source funding to help our Association to the next stage.

One step at a time we will make a difference!

Thank you to those who nominated me for these WA awards, this is a great opportunity to be apart of this amazing event and a fantastic platform to share more understanding around XYY Syndrome.

Fantastic Australia Day Out!

Amber Events, XYY Awareness, XYY Syndrome

I am very proud to have been nominated and a finalist for the Australia Day awards Mandurah WA, Citizen of the Year award.

Just to be nominated is an amazing feeling. 

XYY Syndrome Association of Australia Inc. (WA – Not for profit for XYY Syndrome)

One step at a time our family and I have worked towards connecting the XYY community and having this syndrome recognised as needing extra support within the educational system. I would like to say a huge thank you to our committee for their ongoing efforts and support on this journey. David Gilkes Anne-Marie McArdle Vanya Almeida Win Gilkes Ken Gilkes this certificate of achievement goes to our team.

Creating positive awareness for XYY Syndrome -WA Regional Achievements and community awards 18th Oct. 2019

Amber Events, XYY Awareness

Another step forward creating positive awareness for XYY Syndrome –

WA Regional Achievements and community awards. Under the Community Tab -Community Service award

#waraca

I’m very proud to say I was nominated for an award and had the opportunity to attend the Gala dinner to receive a certificate of achievement for creating positive awareness for XYY Syndrome.

Western Australian Charity Launch

Amber Activity, Events, XYY Awareness, XYY Syndrome , , , , , , , , , , , , , , ,

What an amazing day at our Western Australian Charity Launch.

We had fantastic support from our local businesses around Lakelands and Mandurah WA.

When creating positive awareness for XYY Syndrome, it is very important to have the community behind us.

With your help, you can give support to the XYY community by showing them they are not alone.

A special thank you to Lakelands Library for their on going support throughout the XYY journey.

XYY Syndrome WA Charity launch 2019
Local businesses that contributed to our launch Download
Local businesses support Download
XYY Syndrome WA Charity Launch Mandurah Mail local newspaper
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019

Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019
Western Australia Charity Launch for XYY Syndrome 2019

Thank you to everyone that attended, you helped create that next stepping stone for positive awareness for XYY Syndrome.

One step at a time we will make a difference!

Focus Foundation Conference 2019 in Brisbane

Amber Activity, Events, XYY Awareness, XYY Syndrome , , , , , , , , , , ,
XYY Syndrome
XYY Syndrome Association of Australia Inc.
Global representatives:
Focus Foundation-USA
XYY Syndrome Association of Australia Inc.
Klinefelter Syndrome Australia Inc.
Australian X and Y Spectrum Support

The Focus Foundation came to Australia from the USA to give those diagnosed with X and Y variations that extra support and help create better understand around their diagnosis.

This conference featured their team of X and Y Chromosome Specialists in Neurodevelopment, Neurogenetics, Endocrinology, PT, Immunology, Executive Functioning, Oral Motor and Speech and Language.

On day 1, we had the opportunity to spend a full day with these amazing specialists at the family clinic and Day 2 was the full day conference.

This conference was very informative.

XYY Syndrome Association of Australia Inc. would support their return for another conference.

Below are a few slides from the conference relating to XYY Syndrome.

Creating awareness for XYY Syndrome and networking with our Western Australia community

Amber Activity, XYY Awareness, XYY Syndrome
28th June 2019
JTC Education Support College Disability Expo, Mandurah WA
18th April 2019
Not even 24 hours home from representing the XYY community at the Focus Foundation conference in Brisbane.

Anne-marie McArdle (our Deputy) and I are out networking with Andrew Hastie Federal Member for Canning -Liberal party and Josh Frydenberg Treasurer of Australia.

What a great way to end this week, its good to be home and representing the future for XYY Syndrome.

Announcement for XYY Syndrome awareness-WAATA 2018 Conference

Amber Activity, Events, XYY Awareness, XYY Syndrome , , ,

west australian association of teacher assistants logo

The West Australian Association of Teacher Assistants Inc.

CONFERENCE 2018

August 3th, 4th and 5th
Hotel Rendezvous, Scarborough

WAATA 2018 Conference program

WAATA 2018 Conference

Announcement for XYY Syndrome awareness, Amber Gilkes guest speaker.

Amber Gilkes Chairperson of XYY Syndrome Association of Australia Inc.

1: (b) What is XYY Syndrome and how can you help as an Educator 
• What is XYY Syndrome
• How XYY Syndrome is diagnosed
• Associated traits
• Sharing helpful tools and resources from specialists and teachers that have worked with her son and other
XYY students.
• Sharing the experience with living and caring for a child with XYY Syndrome as well as strategies utilised at
school to engage and get the best out of the students.
• Emphasise the importance of communication between the teacher, EA, and parent in relation to the needs
of each individual child.