WAATA Conference 2018
Events
Announcement for XYY Syndrome awareness-WAATA 2018 Conference
The West Australian Association of Teacher Assistants Inc.
CONFERENCE 2018
August 3th, 4th and 5th
Hotel Rendezvous, Scarborough
Announcement for XYY Syndrome awareness, Amber Gilkes guest speaker.
Amber Gilkes Chairperson of XYY Syndrome Association of Australia Inc.
1: (b) What is XYY Syndrome and how can you help as an Educator
• What is XYY Syndrome
• How XYY Syndrome is diagnosed
• Associated traits
• Sharing helpful tools and resources from specialists and teachers that have worked with her son and other
XYY students.
• Sharing the experience with living and caring for a child with XYY Syndrome as well as strategies utilised at
school to engage and get the best out of the students.
• Emphasise the importance of communication between the teacher, EA, and parent in relation to the needs
of each individual child.
XYY Syndrome Survey Challenge
For XYY Syndrome males and families:
Do you want to make a difference for XYY Syndrome?
Grab a cuppa and fill out our survey now.
https://www.surveymonkey.com/r/XYY_SYNDROME
Dear XYY males and families,
Please find attached the survey we have created as a way to assist us in gathering important information on XYY Syndrome and how it effects each individual. If you would like to fill out this survey, please answer only relevant questions relating to you and your situation. Please do not use names when completing this survey.
By filling in this survey you are giving consent for XYY Syndrome Association of Australia Inc. to use this information.
The information provided will be used to form the basis of our research and help ensure current information is made available through our website and Facebook support group. By comparing the answers from the surveys, we aim to gather as much information as we can about the differences and similarities relating to the traits, ages, diagnostic procedures, educational needs and supports available for those with XYY Syndrome. We also aim to find the areas that are lacking appropriate funding and support, with the view of using this information to raise awareness where it is needed most.
We sincerely thank you for taking the time to share your information, we understand this survey has asked some very personal questions. The information will be respected and only used for raising awareness and better understanding of XYY Syndrome.
https://www.surveymonkey.com/r/XYY_SYNDROME
Kind regards
Amber Gilkes
Chairperson
XYY Syndrome Association of Australia Inc.
CREATING POSITIVE AWARENESS FOR XYY SYNDROME
DAY 1:
WOW this is going to make a difference for XYY Syndrome.
After only one night of our XYY Syndrome survey being released globally to all the XYY males and families, we had an incredible 23 responses!
And with that I decided to set a challenge for myself to show just how much I care for the future of XYY Syndrome.
I will swim 1 lap at the pool (50m) for every survey returned!
Today 23 laps
Thank you to everyone for your support on this journey
DAY 2: 22nd May 2018 
Wow- 71 responses in 48hrs for our XYY Syndrome survey!
I’m sticking to my commitment,1 lap in the pool for every response, 20 laps in the pool today.
I’ll do 20 laps every second day to keep up with the responses.
Keep responding everyone, together we will make a difference!
DAY 4: 24th May 2018
What an incredible response 85
I’m sticking to my commitment 1 lap in the pool for every response, 45 laps today.
Keep responding everyone, together we will make a difference!
DAY 5: 25th May 2018
What an incredible response 95
I’m sticking to my commitment 1 lap in the pool for every response
Another 7 laps today 95 laps in total achieved
Keep responding everyone, together we will make a difference!
DAY 8: 28th May 2018
WOW- Survey returns hit 108 responses!
I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
Tomorrow I’ll do 13 laps to catch up to the responses
Keep responding everyone, together we are making a difference!
DAY 9: 29th May 2018
115 responses!
20 laps achieved today and I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
Keep responding everyone, together we are making a difference!
DAY 10: 30th May 2018
120 responses!
Day 10- For our XYY Syndrome survey!
5 laps today
I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
Keep responding everyone, together we are making a difference!
DAY 11: 31st May 2018
WOW 127 responses!
7 laps today and I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
Keep responding everyone, together we are making a difference!
DAY 16: 5th June 2018
Half way to closing date!!
Amazing effort everyone 134 responses
Keep responding everyone, together we are making a huge difference for the future of XYY Syndrome and creating positive awareness at the same time.
20 laps, I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
DAY 18: 7th June 2018
Amazing effort everyone 137 responses
Keep responding everyone, together we are making a huge difference for the future of XYY Syndrome and creating positive awareness at the same time.
5 Laps clocked to match the survey responses
I’m sticking to my commitment 1 lap in the 50 meter pool for every response!
DAY 19: 8th June 2018139 responses
Keep responding everyone, together we are making a huge difference for the future of XYY Syndrome and creating positive awareness at the same time.
3 Laps clocked to match the survey responses
I’m sticking to my commitment 1 lap in the 50 meter pool for every response returned!
Thank You
On behalf of XYY Syndrome Australia Association of Australia Inc. we would like to extend our heartfelt thank you for your contribution towards your contribution to our vision and mission. Your support means a lot to us, and with your help, we can make a significant impact on the lives of those we serve.
Thanks to your generosity, we were able to fund critical goals (Camp 2023, Operational costs, awareness campaigns, brochures to distribute to healthcare and education institutions)
It is inspiring to see businesses, like yours, take an active role in giving back to the community. Your dedication sets an excellent example for others to follow. Your involvement not only strengthens our community but also encourages others to join hands in creating a positive and lasting impact.
We have been able to provide much needed awareness to those who may not have had the opportunity to hear about us. Your generosity has truly made a difference, and we are incredibly grateful for your support.
Please accept our deepest appreciation for your sponsorship. To show our gratitude we would be honoured to recognise your contribution through our various communication channels, including social media, our website, and event promotions. If you have any specific preferences or requirements regarding the acknowledgment of your support, please let us know, and we will ensure it is carried out accordingly.
Once again, we extend our heartfelt gratitude to you and your entire team for your kindness and generosity. We truly value our partnership and look forward to continuing our collaboration to bring about positive change in the lives of those who need it most.
We could not have done it without you. Thank you once again for being an invaluable sponsor.
With warmest regards,
Standing Tall For XYY Syndrome
Creating positive steps for XYY Syndrome.
XYY SYNDROME MADE THE PAPER!
Today I attended an event “Light Up Lakelands – Local Heroes” as I had been nominated in recognition for my efforts in creating awareness for XYY Syndrome.
It was a wonderful morning, meeting the other nominees, making connections within the local community and raising the profile of XYY Syndrome.
Thank you to everyone for nominating me as a finalist, creating awareness is very important for the future of families, like ours, experiencing life with XYY Syndrome.
Show your support for XYY Syndrome
XYY Syndrome awareness – 25 March 2017
Adam Blackwell
Please show your support
Adam is a part of our support network and standing up for XYY Syndrome by telling his story, which is not an easy thing to do.
Please show your support by donating towards his amazing efforts and creating awareness for XYY Syndrome.
You Can Do it Adam!
We have donated, every donation counts towards making that difference.
Please click here to make your donation
Adam’s Story
Hi, I’m Adam
I have 47 XYY syndrome with is a genetics disorder. It affects 1 in 1000 male births. Problems it may cause is learning disabilities, low muscle tone, delayed motor skills including coordination, balance etc. Many boys suffer from emotional or behavioural issues.
What i would like to do is help this charity to make a small profit from my fundraiser and hopefully make people more aware of the syndrome and how it affects different individuals.
If you would like any more information about the syndrome then please feel free to ask me or alternatively if you would like to read about it unique have an area about 47 XYY syndrome.
Please donate any money at all to this charity they help to provide information to families and people that suffer from all sorts of different genetics disorders.
You want just be helping me, you will be helping anyone that has a genetics disorder. Please share this post to help raise awareness.