Today marks 2yrs for our Association
XYY Syndrome Association of Australia Inc. will continue to create positive awareness for XYY Syndrome and connect the XYY community.
Thank you for all your ongoing support.
2 Years Mark!
Author: Amber
Fantastic Australia Day Out!
I am very proud to have been nominated and a finalist for the Australia Day awards Mandurah WA, Citizen of the Year award.
Just to be nominated is an amazing feeling.
XYY Syndrome Association of Australia Inc. (WA – Not for profit for XYY Syndrome)
One step at a time our family and I have worked towards connecting the XYY community and having this syndrome recognised as needing extra support within the educational system. I would like to say a huge thank you to our committee for their ongoing efforts and support on this journey. David Gilkes Anne-Marie McArdle Vanya Almeida Win Gilkes Ken Gilkes this certificate of achievement goes to our team.
Creating positive awareness for XYY Syndrome -WA Regional Achievements and community awards 18th Oct. 2019
Another step forward creating positive awareness for XYY Syndrome –
WA Regional Achievements and community awards. Under the Community Tab -Community Service award
I’m very proud to say I was nominated for an award and had the opportunity to attend the Gala dinner to receive a certificate of achievement for creating positive awareness for XYY Syndrome.
More positive awareness for XYY Syndrome – Riverside Education Support Centre WA newsletter, 22nd August 2019
Western Australian Charity Launch
What an amazing day at our Western Australian Charity Launch.
We had fantastic support from our local businesses around Lakelands and Mandurah WA.
When creating positive awareness for XYY Syndrome, it is very important to have the community behind us.
With your help, you can give support to the XYY community by showing them they are not alone.
A special thank you to Lakelands Library for their on going support throughout the XYY journey.
Thank you to everyone that attended, you helped create that next stepping stone for positive awareness for XYY Syndrome.
One step at a time we will make a difference!
Media release
MEDIA RELEASE: 5/7/19
WHY THE EXTRA CHROMOSOME?
Newly accredited W.A. Charity, XYY Syndrome Association of Australia Inc., invites you to learn more about this rare genetic syndrome at their launch event on Tuesday 23rd July at Lakelands Library and Community Centre.
Chairperson XYY Syndrome Association of Australia Inc., Amber Gilkes said her Association was championing the awareness for this syndrome which was caused by a random split in the cells, which creates an extra copy of the Y Chromosome (XYY).
Only males are born with XYY Syndrome and diagnosis can only be confirmed by a genetic blood test. XYY Syndrome occurs in 1:850 males, but some XYY males often remain undiagnosed.
Mrs Gilkes said the XYY Syndrome Association of Australia Inc. focus is providing the community with a positive understanding of XYY Syndrome and give support to XYY males, their families and carers.
“As a parent of a child with XYY Syndrome, I understand all too well the need for support, understanding and community education on this important condition.
It’s been a four-year journey to establish the association, raising the awareness of XYY within the broader community and at a state and federal government level,” said Mrs Gilkes.
In line with the Associations objectives, late last year, Amber Gilkes presented at The Western Australian Association of Teacher Assistants Inc. (WAATA) Conference and attended the Focus Foundation’s Conference in Brisbane as a representative of XYY Syndrome Association of Australia Inc.
Focus Foundation Conference 2019 in Brisbane
Focus Foundation-USA
XYY Syndrome Association of Australia Inc.
Klinefelter Syndrome Australia Inc.
Australian X and Y Spectrum Support
The Focus Foundation came to Australia from the USA to give those diagnosed with X and Y variations that extra support and help create better understand around their diagnosis.
This conference featured their team of X and Y Chromosome Specialists in Neurodevelopment, Neurogenetics, Endocrinology, PT, Immunology, Executive Functioning, Oral Motor and Speech and Language.
On day 1, we had the opportunity to spend a full day with these amazing specialists at the family clinic and Day 2 was the full day conference.
This conference was very informative.
XYY Syndrome Association of Australia Inc. would support their return for another conference.
Below are a few slides from the conference relating to XYY Syndrome.
Creating awareness for XYY Syndrome and networking with our Western Australia community
JTC Education Support College Disability Expo, Mandurah WA
Not even 24 hours home from representing the XYY community at the Focus Foundation conference in Brisbane.
Anne-marie McArdle (our Deputy) and I are out networking with Andrew Hastie Federal Member for Canning -Liberal party and Josh Frydenberg Treasurer of Australia.
What a great way to end this week, its good to be home and representing the future for XYY Syndrome.
WAATA Conference 2018
Announcement for XYY Syndrome awareness-WAATA 2018 Conference
The West Australian Association of Teacher Assistants Inc.
CONFERENCE 2018
August 3th, 4th and 5th
Hotel Rendezvous, Scarborough
Announcement for XYY Syndrome awareness, Amber Gilkes guest speaker.
Amber Gilkes Chairperson of XYY Syndrome Association of Australia Inc.
1: (b) What is XYY Syndrome and how can you help as an Educator
• What is XYY Syndrome
• How XYY Syndrome is diagnosed
• Associated traits
• Sharing helpful tools and resources from specialists and teachers that have worked with her son and other
XYY students.
• Sharing the experience with living and caring for a child with XYY Syndrome as well as strategies utilised at
school to engage and get the best out of the students.
• Emphasise the importance of communication between the teacher, EA, and parent in relation to the needs
of each individual child.