Show your support for XYY Syndrome

XYY Syndrome awareness – 25 March 2017

Adam Blackwell

Please show your support

Adam is a part of our support network and standing up for XYY Syndrome by telling his story, which is not an easy thing to do.

Please show your support by donating towards his amazing efforts and creating awareness for XYY Syndrome.

You Can Do it Adam!

We have donated, every donation counts towards making that difference.

Please click here to make your donation

Adam’s Story

Hi, I’m Adam

I have 47 XYY syndrome with is a genetics disorder. It affects 1 in 1000 male births. Problems it may cause is learning disabilities, low muscle tone, delayed motor skills including coordination, balance etc. Many boys suffer from emotional or behavioural issues.

What i would like to do is help this charity to make a small profit from my fundraiser and hopefully make people more aware of the syndrome and how it affects different individuals.

If you would like any more information about the syndrome then please feel free to ask me or alternatively if you would like to read about it unique have an area about 47 XYY syndrome.

Please donate any money at all to this charity they help to provide information to families and people that suffer from all sorts of different genetics disorders.

You want just be helping me, you will be helping anyone that has a genetics disorder. Please share this post to help raise awareness.

 

 

Awareness Event Thank You

THANK YOU
Our Awareness Event for XYY Syndrome was hosted on 25 November 2016

XYY Syndrome Awareness Event Thank You

Firstly, thank you for the amazing support from from our local Businesses and Community

RILEY’S BARBER SHOP, MEADOW SPRINGS
BAKERS DELIGHT, MEADOW SPRINGS
IN2HAIR, MEADOW SPRINGS
OPTIMAL PHARMACY PLUS, MEADOW SPRINGS
JAMBERRY, NICOLE & KELLY
SCENTSY, DIANE
GYMBAROO MANDURAH
BRAZROOS LOCAL SOCCER CLUB
ROCKINGHAM AUTISM SERVICES
PAMELA FOR HER AMAZING PHOTOS
THERAPY FOCUS

I would like to take a moment to thank all my family, friends and XYY Families we have met along this journey and most of all Thank You to my amazing husband David.

With everyone’s support and guidance, David and I have achieved our goals for this awareness event and we look forward to hosting our next one.

Pictures on the day of the event, creating awareness for Boys, Teenagers and all Males born with XYY Syndrome.

Awareness event_THANK YOU_website

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Awareness Event For XYY Syndrome

Awareness Event For XYY Syndrome

Come show your support for families, children, teenagers , adults diagnosed with XYY Syndrome.

Only males are born with XYY Syndrome and only a true diagnosis can be made by genetic testing( blood test)

Our son was born with XYY Syndrome and needs daily support, however his diagnosis is not recognised as needing specialised support and we have funded a lot on our own.

My husband and I decided to host this awareness event to share our story and share as much information as we can for all XYY boys, teenagers, adults & families that need support and like us have found it very hard to find the support that’s needed.

On our journey we have come across many other XYY families, boys, teenagers and adults online just like us, the common thread is that this diagnosis is just pushed aside.

I hear this a lot, we get told just give him love and you’ll be ok. We do, but we need so much more support and understanding then that.

Please help us and show your support by sharing the awareness for XYY Syndrome.

Click this link XYY Syndrome Awareness Event 25 November 2016   for full details